The informed consent will ask you to provide the following consent:
Would you like to take part in the study?:
Can we monitor information about your name, address details and town/city in the Key Register of Persons (previously the Municipal Basic Administration), so that we can inform you about, for example, the result of the examination? This will also allow us to take into account your death if necessary. In this case, we will not approach your descendants.
Can we collect 3 vials of blood in order to analyse substances in the blood that could be related to lung cancer? (Depending on location)
May we share the results of the examination with your GP?
May we inform your GP if we find something unexpected on the CT scan?
May we request information about your health, which is relevant to this study, from your treating physician and other care providers?
If necessary, may we ask the Centraal Bureau voor Genealogie and Statistics Netherlands (CBS) for the date and cause of death?
May we ask your healthcare insurer about the medical costs you incurred in relation to your lung cancer? When doing so, none of your (medical) details will be shared with your health insurer.
May your study data (without name, address and date of birth) be used for other related medical/scientific research?
All (medical) information will only be used for the 4-IN-THE-LUNG-RUN study. We will not give medical information about you to any of the above-mentioned organisations. Data will also be processed after encryption, which means only a few authorised people will be able to access details like your name, address, etc. Your personal details will only be used for invitations and when informing you about the result of the CT scan.